LATEST SENATOR DONNELLY
WASHINGTON -- U.S. Senators Joe Donnelly (D-Ind.) and Ron Johnson (R-Wis.), chairman of the Senate Homeland Security and Governmental Affairs Committee, sent a letter to the House Committee on Energy and Commerce on Monday night in advance of a U.S. House of Representatives Committee hearing today on ‘Right to Try’ legislation. A bipartisan Donnelly-Johnson ‘Right to Try’ bill passed the Senate in August unanimously, and the senators’ letter urged the House to pass the bill immediately.
The senators wrote, in part, in the letter, “This pursuit has always been about protecting hope. Patients (along with their doctors) are informed, capable of making rational decisions, and have the right to do whatever they can to try to save their own lives…Our test has always been a simple one: will the legislation benefit Jordan McLinn, a seven year-old old boy with Duchenne Muscular Dystrophy, a terminal disease by anyone’s standards, but not one that will likely take his life within six months, one year, or even two.
“…Every day Congress fails to act is a day on which potentially thousands of patients lose hope. As Frank Mongiello, who suffers from amyotrophic lateral sclerosis, stated when the Senate bill was first introduced over 16 months ago, ‘We don’t have the luxury of time.’ On behalf of Frank, Matt, Jordan, and Trickett’s family, we must do whatever we can to ensure that Right to Try is passed by the House and signed into law as soon as possible.”
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